Cleaning House!

Ahh Sunday. Prep day… Rest day… Game day… whatever it is for you, Enjoy It! For me, Sundays are my kick-it-into-gear day: this is where I meal prep, schedule prep, meeting prep, & self-prep. I truly go through my entire house, refrigerator, and “chakra house” to prepare myself for the week.

I wasn’t always like this though. I spent a good majority of my life living hour to hour. I was very much a reactive person rather than a prepared person. I got so good at it, that I prepared for the unknowns. But this wasn’t so great because that just meant that I was spending the entire day waiting for something to blow up in my face. Now, since we cannot plan every moment of our lives, we can at least try to take control of those scattered moments. This was something that I really needed to get a handle on since stress was a major episode in my everyday life that exacerbated my psoriatic reactions.

For me, being in a clean environment is critical. Not only am I allergic to dust and grime, but clutter truly restrains me. It hinders my mental and physical productivity. I simply become too overwhelmed with EVERYTHING in front of me that I can’t take the 1st step to “just cleaning up”. So I have started making sure that everything has a “place to live”. This goes for everything in my life:

  • My ironing board lives in the laundry closet;
  • My jewelry lives in the jewelry box;
  • My shoes live on the shoe rack;
  • My bad thoughts live only for a moment then go onto my notepad and stays only there;
  • My pain lives in my knees;
  • And so on …

I say it so often that my soon to be stepdaughter has started telling her dad to put his shoes where they live once he gets home! HaHaHa! Yes, that does make me happy.

I deserve at least one glass .. right?!
I deserve at least one glass .. right?!

Same goes for my eating. Since I am the reigning Iron Chef Champion (well … in my kitchen anyways) I have to not only eat well, but eat clean. If you have psoriatic arthritis, you know that doing this for every meal and every day is almost impossible. Living with chronic illness really makes you a “preparer” (if that’s a real word even?!). You always have to be prepared to be debilitated completely. So I figure that if God-willing, I am ok on Sunday’s then I can prepare all of the components of my meals that day. This makes for a quick and effortless way to cook during the week. So I have to go through my fridge and the pantry, sort through all of the ingredients, and plan away. Actually, I have some really cool recipes to share with y’all this week. I have to start my detox/elimination diet TOMORROW (the dreaded Monday) so I have had to plan out some key meals to ensure success.

On a deeper level, I have gone to extreme measures to plan out my schedule which really helps me emotionally.

My organized chaos of a schedule
My organized chaos of a schedule

Ahhhh Yeah .. that’s my schedule… oooon an Excel spreadsheet…  aaaand yes, it’s planned out for the year. I know it’s a bit intense, but it truly does keep my mind free of clutter and has reduced my anxiety tremendously. The set up was a little overwhelming, but nothing a cut and paste function couldn’t fix. I highly recommend keeping a calendar for yourself. Include yoga sessions, meditation sessions, and meal prep times. Allow yourself to see what a snapshot of your life looks like (on paper). Visualize yourself keeping this schedule. Obviously, you don’t HAVE to create an Excel spreadsheet, but I find it important to jot things down. I feel that in doing this, you can free your thoughts and let your mind rest in knowing that you can let go (mentally).

So get to it! Clean up your space; clean out your fridge; and clean up your schedule. Do these things so that you have the clarity to emotionally enjoy your life and your surroundings more freely.

Disappointed …

Disappointed …

Do you remember when you were a little kid and your mom said, “Ok, get your shoes on. We’re gonna get some ice cream”! OH WOWZERS!!!! How exciting right?! Then, the phone rings and 25 minutes later, you’re stuck sitting there with your shoes on .. just waiting. Then finally, a glance of hope! She covers the phone then whispers, “Sorry, Love. Maybe tomorrow”. Gesturing that she’s stuck on this stupid call.

Yep. That’s where I am right about now: Wanting to throw the phone across the room.   

I just received a phone call informing me that I needed to reschedule my doctor’s appointment. I know. Usually, people would be ecstatic to cancel that right?! No. Not when you have been waiting to see this Dr. for DAYYYYYYYSSSSSSS and now you are only 2 hours out.

Living with Psoriatic Disease leaves a ton of unknowns on your chart. I have been getting sick more often than not and my pain happens to be more and more unbearable. I NEED to know what’s happening to me. It is so unsettling not knowing how I am going to wake up tomorrow. Before, I would tell myself, “just get through today” & then find comfort in knowing that I was able to do it. Now .. I have to not only make myself sleep .. but also have anxiety about what tomorrow will feel like. Like:

  • Will it hurt when I wake up?
  • Will I be able to move?
  • Will I have a fever?
  • What’s next? …..

I’m disappointed because .. I simply have no idea. Ironically, the phone ringing that messed up my ice cream date years ago is now the sound I am longing to hear.

Immunocompromised?!

Immunocompromised?!

Ugh .. today has been a rough one. I worked myself apparently to my new “max” yesterday and today I am paying for it with a 101.7 fever, the shakes, and loss of appetite. Let me just bring you back to who I was way back when so that we can (together) have a clearer picture of this drastic change.

One of my 1st grown up jobs, I was with for almost 9 years. In those 9 years, I must have called in sick about 3 times. And mind you, I only called in sick those times because my boss had previously sent me home every time I had attempted to come in. I was never the sickly one. It would be impossible for me to “get what he has” if anything was going around work. Apparently, that is no longer the case. Actually I still remember when my doctor had asked me if I wanted him to give me documentation advising that I am immunocompromised. Like what in the heck is that?!?! I barely knew how to spell that, let alone want to carry around a piece of paper saying such.

immuno

I swear the only time it was cool to be “immunocompromised” was when this older gentleman seated next to me on my flight to Guatemala was coughing up a storm and the only seat available for me to switch to was in 1st class. Hahaha, that was actually pretty great!

But today .. my immunodeficiency is not so great. I was probably around someone with a runny nose and now here I am, useless in bed.

It still baffles me that a “skin rash” diagnosis like Psoriasis has changed so much of me. My resilience against becoming sick has lessened, but my resilience within to have a beautiful life has strengthened leaps and bounds. My skin seems to have weakened because of the scratching and the sores, but I have become thick-skinned against the stares and the comments made about my appearance. My voice has often cracked or has been muted by being sick and the soreness  in my throat, but I have been more VOCAL about my pain, my struggle, my overcoming, my beautiful life.

Psoriatic Disease truly changes you .. it’s your heart though that determines how you can adapt to that change.

I Wanna Dance ..

I Wanna Dance ..

Yesterday I felt like dancing for 10 hours straight. You know not too long ago I was a Tahitian and Hula dancer, I competed and taught Latin Ballroom, I created choreography for dozens of Traditional Filipino Cotillions, I was a #CrossFit & Yoga Monster (jumping from Bosu to Bosu and onto 3.5 feet tall tractor tires) … but today, I am in pain.

I worked so hard to be in the best shape of my life. Then one day I wake up with half of my body covered in what I thought at the time was #Hives. I was so confused. I had no idea what I had done the day before to cause me to break out in this rash. Since it wasn’t causing me any discomfort, I went into self-remedy-mode: Warm salt rinse, Collagen pads, Aloe; and any type of topicals that I could get my hands on. This rash “persisted” for about a week and half when I decided to detox. I ate clean, no alcohol or caffeine of any kind, zero sweets, all that good stuff. I thought for sure that it may have been “something I ate” so there. This should make it go away right?! No, I actually developed a larger patch on my shins.

Once this “rash” was visible for all to see was when I went to my doctor. She then referred me to a dermatologist who told me that it could be either #Eczema or #Psoriasis. He gave me some topical ointments to rub on and called it a day. When it wasn’t getting better I sought out a dermatologist who specialized in Eczema and/or Psoriasis and that’s when I was officially diagnosed with Psoriasis. Only 6 months later was I diagnosed with #PsA or #PsoriaticArthritis and my life has been forever changed.

Today, I walk for me. I walk in hopes that maybe one day soon I can have my life back. I don’t regret this part of my life .. this struggle .. for it has reminded me of the strength and resilience within .. but I long to glide across the floor again as if I were flying, to dance without a time limit, to move without pain.

Today, I raise money for the #medical research that I believe in, for the work that is being funded now so that I can still have an active future, for the answers that all have longed for.

Today, I will participate in every event, in every walk, in every conference so that I can make a difference in some way.

Please support my #DREAM of a life free of psoriasis and psoriatic arthritis by making a donation today.

All money raised by #TeamNPFsf Walk provides people with psoriatic disease the services they need to live well, while funding research for a cure. Thank you so much for your support of this project that is sooooo important to me. Join me! We can do together what I simply cannot do alone.

http://npf.donordrive.com/index.cfm?fuseaction=donorDrive.team&teamID=5819

Can You Hear Me Now?!

Can You Hear Me Now?!

Meeting a Friend ..or.. Meeting Jesus at the Crossroads ..

Do I believe in #coincidence? Maybe if you asked me a long, long time ago I would have said “Yes”. But today, I say “Thank you God for making me turn onto this street so that I could stay on the road that You have laid out for me and my life”.

Today, I am practicing my #Sabbath. I was at home, still in bed, and just following the schedule of life instead of my #Excel spreadsheet when I received a message on Facebook. It was a #networking contact reaching out to me to finalize some details for an event. I looked at her message and noticed that her business name was attached. It so happens that she is currently working for an old company that I used to work for. When I inquired about it she simply asked if I was interested in coming back to work for #PremierDesignsJewelry. Ok, now before you roll your eyes like I did, let me just tell you that this is a daily conundrum of mine: “To Be or Not To Be”?! Like, I am so #humbled that #God has #blessed me with so many talents. And like you, as I’m sure the many other people that have #donated to “these talents”, I’m asking … “Kat, do you really want to get into yet another business venture, another license, more training sessions, more “I believe that this is it” moments”?! Right! That’s exactly what I said: NO!

#ButGodHadOtherPlansForMe

I had to finalize the details for the event anyways so we decided to meet at #Starbucks. On my way over since I knew that she would bring it up again, I had a conversation with God. It started off with me saying .. “If it’s Your will …”  but I cut myself off and simply reminded Him that I was hard of hearing and that He needed to flat out scream at me and tell me if I should even consider going back to this opportunity. So I park, walk into Starbucks and say to Him: “Am I even supposed to be here?”

When I get in line and order my drinks it so happened that my Starbucks gift card didn’t have enough to cover my tab, but no worries. I had a $50 bill tucked into my phone case. When the cashier saw it, he refused to take it because he didn’t have enough to change me out. Well, my extra cards were in the wallet that I had left at home because for goodness sake I was only going down the street to Starbucks hahahaha.. Long and behold the woman behind me had change for my large bill and was happy to help. The cashier, amazed, says “I have been behind the register for the last 4 years and I have never seen anyone have change like that. You (looking at me) must be really lucky. Talk about being at the right place at the right time”.

Alright, slightly baffled, I was not only #thankful for the kind lady, but was also taken aback by the cashier’s choice of words. Like, why would you say all of that?! Was that God “screaming” it out to me that I was supposed to be there?!

There were a couple of other things that happened throughout that #coffee / #chai chat that confirmed that meeting, but I’ll save that for another day. For now, I heard it loud and clear. By the way, the point of this entry was not to share whether I started a new business or not .. it was to reiterate that at your crossroads you are not alone. And if you’re open to setting your pride and/or “needs” aside, God will give you the best thing for you. #trust #faith #listen